About Mesothelioma UK

Mesothelioma UK is a national charity dedicated to supporting everyone affected by mesothelioma, an asbestos-related cancer. They offer a comprehensive range of services and unwavering support throughout your journey.

Their Mission

Empowering Patients: They advocate for better treatment options, improved care, and a stronger patient voice. Their goal is to enhance patients' quality of life and empower them to live longer, fuller lives.
Preventing Future Cases: Public education and advocating for stricter regulations are at the forefront of their efforts. They work tirelessly to raise awareness of the dangers of asbestos exposure, aiming to create a future free from this preventable disease.

A Legacy of Growth and Support

Established in 2004, Mesothelioma UK has seen remarkable growth. From its beginnings as a local resource centre, it has become an independent Charitable Trust and a Charitable Incorporated Organisation.

Services provided

Specialist Nurses

Their network of dedicated Mesothelioma Clinical Nurse Specialists within hospitals across the UK provides vital support. They offer expert knowledge, connect patients with relevant clinical trials, and help you access treatment. Additionally, they work to effectively manage symptoms, leading to fewer unplanned hospital admissions and an improved overall quality of life.

Freephone Support Line

A dedicated helpline is available for patients, families, and anyone with questions or concerns. Trained staff can provide a listening ear, information, and emotional support.

Benefits Advisors

Their specialist advisors offer guidance on navigating the complex world of benefits associated with mesothelioma, ensuring people receive the financial support they deserve.
Travel Grants: Financial assistance is provided to help ease the burden of accessing crucial clinical trials, particularly for those who need to travel for specialized treatment.

Research Centre

A dedicated research centre at Sheffield University drives mesothelioma treatment and prevention advancements. Mesothelioma UK directly contributes to finding a cure for this disease by funding and collaborating on research initiatives.

Accredited Information Service

Reliable and up-to-date information vetted by the Patient Information Forum empowers people with knowledge. This allows them to make informed decisions about their healthcare and participate actively in their treatment plans.

We like going to the support group and find there are other people to talk to who understand our situation. We enjoy the company and the activities we do some months. People also share what treatments are available and how to get them.

AADSG group attendee
So pleased I found this group for my mum and my family. Keeps us positive through hard times and it's so good to share experiences.

Carer of a Mesothelioma patient
It’s great to get professional advice from some of the nurses who come along to the meetings.

AADSG group attendee
The social connections with other people who are in the same situation is a real benefit to the group. The feeling that you are not alone in dealing with this horrible disease.

Carer of a Mesothelioma patient
We look forward to our monthly meetings as we enjoy the various activities that are arranged for us to take part in, and the general companionship and friendships of everyone.

AADSG group attendee
I have found the group very supportive and helpful, discussing with others the journeys we all go on. It seems that treatment is improving through different trials that are now available.

Carer of a Mesothelioma patient
I appreciate the various speakers who have come along to the group meetings as well as the different activities that are organised to take part in.

AADSG group attendee
I’m very proud to be part of this group and I hope I can pass on my experience of caring for someone with Mesothelioma with those who have it now.

Carer of a Mesothelioma patient
It’s a very supportive and friendly group - I hope my experience helps others in some way who are also on this journey.

AADSG group attendee
Having the monthly meetings with guest speakers has been really beneficial.

Carer of a Mesothelioma patient
The support group has allowed me to meet other people with the same condition and be able to talk about the diagnosis and way forward. The help and support is invaluable.

AADSG group attendee
The help and support, and contacts with professionals in the health and social sector is a real benefit of the group.

Carer of a Mesothelioma patient
Being able to discuss ways of controlling pain with others in the same situation has been really useful.

AADSG group attendee

Latest news

Anglia Asbestos Disease Support Group celebrates its eighth anniversary

18 May, 2024

Anglia Asbestos Disease Support Group (AADSG) is celebrating its eighth anniversary today. The group supports patients who are suffering from an asbestos-related disease, as well as their carers and families....

Fundraising reaches the £20,000 milestone

17 March, 2021

The campaign to raise funds for a Mesothelioma UK Nurse Specialist in Norfolk or Suffolk reached a milestone this week when the fund exceeded £20,000. Historic exposure to the banned...

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